Parkinson's Research at Stanford
This study will look into a different management strategy for those of you with DBS
​for more information see:
SPRING: pranav_akella@stanford.edu 
or Human Motor Control and Neuromodulation Lab
http://neurology.stanford.edu/labs/bronte-stewartlab/


Parkinson’s Research at UC Berkeley
We are recruiting individuals with Parkinson’s disease (without DBS).
Reimbursement~100 dollars), Flexible duration, Flexible scheduling(2-3 hours)
for more information contact
ivrylab-parkinson@berkeley.edu
http://ivrylab.berkeley.edu/
2121 Berkeley Way, Berkeley, CA 94704

WEBINARS  
Thanks to Denise Dagan
http://med.stanford.edu/parkinsons.html

We have discontinued the caregiving webinar list because very few virtual events are specific to PD caregiving.  When we do find webinars specific to PD caregiving, we will include them in this Parkinson’s-focused webinar list.
​- Denise
http://med.stanford.edu/parkinsons.html 

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The list below is of Parkinson’s-focused webinars and virtual events with speakers. We at Stanford Parkinson’s Community Outreach will try to attend as many of these PD-focused webinars as possible and share our notes. We email our notes to our “Stanford PD Info” email list (subscribe to our email lists). And our notes from PD-focused webinars are often posted to our blog.

About the list below, unless indicated, all webinars and virtual events are:

• Times listed as PT.  (We are based in California, after all.)
• One-hour in duration.  (Usually, the speaker talks for 30-40 minutes and there’s a question-and-answer session for the remaining time.)




• Tuesday, March 18, 12pm
  Take Control of Your Parkinson’s Journey: How StrivePD Can Support Your Care
  Description:  StrivePD is a tool on iPhone and Apple Watch that can track symptoms, medication adherence, and activity levels while staying connected to your care team and accessing clinical trial opportunities.  Hear from representatives of the developer about both free and paid subscription options.
  Speakers:
  Amanda Hare, DNP, Lead Medical Science Liaison, Rune Labs
  Brianna Hood, PT, DPT, CSCS, Clinical Specialist, Rune Labs
  Host:  PMD Alliance
  Registration webpage
  The webinar recording may be posted to the PMD Alliance YouTube channel
  
  
  Tuesday, March 19, 7am
  What’s Your Workaround? Tips/Tricks Roundtable
  Description:  Join the conversation to share your tips, tricks, secrets, and hacks for making life easier or more healthy with Parkinson’s. Gadgets, gizmos, and anything that you discovered that improves your life is greatly appreciated!
  Host:  Parkinson Social Network (PSN)
  Registration webpage
  The webinar recording will be posted to the PSN YouTube channel.
  
  
  Wednesday, March 19, 10am
  Hospital Journeys: Lived Experiences and Practical Support
  Description:  Learn about the unique challenges faced by people with Parkinson’s in the hospital, discover resources to support you during hospital visits, and hear from community members who share their personal experiences of navigating hospital stays with Parkinson’s with practical advice.  Part of the Wellness Wednesday webinar series.
  Speaker:  Annie Brooks, MSW, senior director of strategic initiatives, Parkinson’s Foundation
  Host:  Parkinson’s Foundation (PF)
  Registration webpage
  The webinar recording may be posted to the Wellness Wednesday playlist of the PF YouTube channel
  
  
  Wednesday, March 19, 11am-12:15pm
  Women & Parkinson’s: Stories and Strategies
  Description:  A movement disorders specialist will discuss fifteen things that women need to know about Parkinson’s Disease (PD) and share the experiences of two women with young onset PD.
  Speakers:
  Indu Subramanian, MD, UCLA
  Li Jiang, person with young onset Parkinson’s
  Sylvie Parent, person with young onset Parkinson’s
  Host:  Parkinson Canada
  Registration webpage
  The webinar recording may be posted to the Parkinson Canada YouTube channel
  
  
  Thursday, March 20, 9am
  Sniff Test: Surprising New Learnings About Smell Loss and Parkinson’s
  Description:  An expert panel will discuss the science of smell, how the nose is linked to brain health and how people with smell loss can play a critical role in understanding Parkinson’s disease whether or not they live with the disease.  Part of the Third Thursday webinar series.
  Multiple speakers
  Host:  Michael J. Fox Foundation (MJFF)
  Registration webpage
  The webinar recording is available on the MJFF YouTube channel
  
  
  Thursday, March 20, 11am
  Exciting Impact of APDA Research
  Description:  Hear from three PD researchers about the research they’ve done with APDA’s investment.  Details about each speaker’s research is on the registration page.  Part of the Dr. Gilbert Hosts webinar series.
  Moderator: Rebecca Gilbert, MD, PhD, Chief Mission Officer, American Parkinson Disease Association
  Speakers:
  Clemens Scherzer, MD, APDA Center for Advanced Parkinson Research
  Sunil Kumar, PhD, University of Denver
  Giulietta M. Riboldi, MD, PhD, NYU
  Host:  American Parkinson Disease Association (APDA)
  Registration webpage
  The webinar recording will be posted to the APDA YouTube channel in the Dr. Gilbert Hosts playlist
  
  
  Saturday, March 22, 6-9:30am
  Learn More. Live Better. Parkinson’s Symposium
  Description:  The symposium program will balance a proactive approach and what lies ahead.
  Multiple speakers
  Host:  Parkinson’s Foundation (PF), Carolinas Chapter
  Registration webpage
  We have no information about recording this event.
  
  
  Saturday, March 22, 8am-12pm
  Parkinson’s Symposium
  Description:  Hear about current and upcoming treatments, ongoing research, and resources.
  Multiple speakers
  Host:  Parkinson’s Foundation (PF) New Jersey & Pennsylvania Chapter
  Registration webpage
  We have no information about recording this event.
  
  
  Sunday, March 23, 10am
  Starting the Conversation: Sexuality and Parkinson’s Disease
  Audience:  Women with PD
  Description:  Learn about the urologic, neurologic, and psychosocial elements of intimacy and sexuality for women with PD.  The speaker will address ways to communicate and strategies to overcome these challenges.
  Speaker:  Rebecca Gilbert, MD, PhD, movement disorder specialist, Chief Mission Officer, American Parkinson Disease Association (APDA)
  Host:  Twitchy Woman
  Registration webpage
  The webinar recording will be posted to the Events page of the Twitchy Woman website
  
  
  Tuesday, March 25, 7am
  Psychosocial barriers and facilitators associated with Quality of Life for People with PD
  Description:  Resilience, social connections, gratitude, and meaningful activities can mitigate depression, anxiety, loneliness, stigma, and demoralization often experienced by people with Parkinson’s. Encouraging a strengths-based approach, cognitive reframing, and self-compassion empowers individuals with Parkinson’s to cultivate optimism, maintain social engagement, and develop adaptive coping strategies to navigate the disease’s emotional and social burdens.
  Speaker:  Bradley McDaniels, PhD, University of North Texas
  Host:  Parkinson Social Network (PSN)
  Registration webpage
  The webinar recording will be posted to the PSN YouTube channel.
  
  
  Tuesday, March 25, 4pm
  The Space Between: Navigating Uncertainty Between At-Risk and Diagnosed
  Description:  Find actionable steps on how you might be able to manage the uncertainty and protect your brain health.
  Speaker:  Padma Mahant, MD, movement disorder specialist, CND Life Sciences, Scottsdale, AZ
  Host:  PMD Alliance
  Registration webpage
  This webinar will not be recorded.
  

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